Administrative Data Research (ADR) Wales – ADR Wales brings together world-renowned data science experts, leading academics and specialist teams within Welsh Government to produce evidence that shapes future policy decisions in Wales. SeRP helps ADR Wales to maximise the utility of anonymous and secure data to shape public service delivery. www.adruk.org
Adolescent Mental Health Data Platform (ADP) – ADP for Mental Health Research brings together a huge range of information relating to the mental health of young people aged 10-24 from across the UK. Provide an unprecedented resource for researchers and policy-makers to improve understanding of mental illness in young people, address historical service challenges, and tackle inequalities in mental health. www.adolescentmentalhealth.uk
Children of the 90s (Also known as Avon Longitudinal Study of Parents and Children) ALSPAC – Between April 1991 and December 1992 ALSPAC recruited more than 14,000 pregnant women into the study and these women (some of whom had two pregnancies or multiple births during the recruitment period), the children arising from the pregnancy, and their partners have been followed up intensively over two decades. SeRP enables this rich resource to the study of the environmental and genetic factors that affect a person’s health and development. www.bristol.ac.uk/alspac
Dementias Platform UK (DPUK) – A public-private partnership that offers facilitated access to detailed information for over 3 million individuals, from 47 long-term studies of health, known as 'cohort' studies. SeRP enables DPUK to bring data from multiple cohorts into a single, secure, environment – the DPUK Data Portal – the need to transfer increasingly large and complex data files between research groups is greatly reduced. www.dementiasplatform.uk
East London Genes and Health – Genes & Health is a long-term study of 100,000 people of Bangladeshi and Pakistani origin that links genes with health records, to study disease and treatments. In the UK as a whole these groups suffer poorer health by a number of measures including diabetes, cardiovascular disease and mental health. SeRP supports the programme to look at how genes influence disease more closely and to identify better treatments to cure or help prevent them. www.genesandhealth.org
Geographical Information System (GIS) – GIS combines the geographic information with health data to analyses related to a particular location. The capabilities of SeRP facilitate the use of these complex data types and linkage.
Health Data Research (HDR) UK London – HDRUK London is part of the HDRUK network that unites health data assets across the UK to make health data research and innovation happen at scale. HDRUK uses the power of SeRP to develop advanced techniques to analyse complex and diverse health data and seize its power to solve health challenges. The London proposal seeks to address each of the national research priorities, proposing four interconnected research initiatives. www.hdruk.ac.uk
Health Data Research (HDR) UK Wales & Northern Ireland – HDRUK Wales & Northern Ireland is part of the HDRUK network that unites health data assets across the UK to make health data research and innovation happen at scale. HDRUK uses the power of SeRP to develop advanced techniques to analyse complex and diverse health data and seize its power to solve health challenges. The Wales and Northern Ireland proposal is modernising public health by advancing health data science methodologies to conduct research at scale. www.hdruk.ac.uk
HealthWise Wales (HWW) - HWW aims to recruit at least 50,000 individuals living in Wales between 2015-2020. These participants are also members of a cohort with longitudinal data on health and lifestyle factors and record-linked to routinely available healthcare data in Wales. SeRP provides a linkage and storage platform for HWW that links these self-reported outcomes with anonymised healthcare records. www.healthwisewales.gov.wales
Knowledge and Analytical Services (KAS) Welsh Government - the Welsh Government’s free-to-use online repository for detailed statistical data for Wales. It allows users to view and manipulate datasets on-screen, including the ability to produce charts. Data can be downloaded in a variety of formats and can be saved and shared. The system covers nearly 1,000 datasets, including key information on Wales’ population, economy, government spending and performance as well as the environment, education, transport and health. www.statswales.gov.wales
Medical Research Council (MRC) - Cloud Infrastructure for Microbial Bioinformatics (CLIMB). SeRP supports the CLIMB project to develop and deploy a world leading cyber-infrastructure for microbial bioinformatics, providing cloud-based computing, storage, and analysis tools for academic microbiologists across the UK, accompanied by a wide range of bioinformatics training activities. www.climb.ac.uk
Population Data Science at Swansea University – SeRP also supports a number of smaller diverse projects from its base at the Population Data Science building at Swansea University.
SAIL Databank - Containing billions of person-based records, SAIL Databank is a rich and trusted population databank (both health and non-health related). It improves lives by providing researchers with secure, linkable and anonymised data, via SeRP, that can be accessed and analysed from anywhere in the world. www.saildatabank.com
BREATHE - The Health Data Research Hub for Respiratory Health
also uses the SAIL TRE and is enabling the use of respiratory health data in cutting-edge research and innovation, to address conditions such as asthma and COPD.
UK Clinical Record Interactive Search (UK-CRIS) part of CRIS Network - UK-CRIS seeks to develop the clinical record into a data asset and research tool for NHS Mental Health Trusts. The aim is to dramatically accelerate research efforts in dementia (and mental health in general). As part of our overall support, SeRP provides the means for ‘federated querying’ – the ability for researchers to query the de-identified data of other participating organisations as well as their own, creating a dramatically richer cohort for research.
UK Longitudinal Linkage Collaboration (UK LLC) - The UK LLC is a national research resource for COVID-19 research. It’s a globally unique Trusted Research Environment (TRE) that offers predictable and efficient access to longitudinal data for researchers and analysts across the UK. Through a single application, the TRE offers pre-pandemic and pandemic data from 24 Longitudinal Population Studies across the 4 nations of the UK. It hosts the linked studies’ data to over 10 types of NHS records and registries including primary care and hospital episodes.
UK Multiple Sclerosis Register (UK MS Register) - The fundamental concept is to capture more real world data about living with MS in the United Kingdom. The Register does this by recruiting people with MS to self-report how their MS changes over time and linking hospital records to these participants. This extremely rich bank of data, powered by SeRP, offers huge potential for research into MS. www.ukmsregister.org
Curtin University – Perth. SeRP has partnered Curtin University to provide world-class data linkage and de-identification, as part of the Helix platform, to ensure that patient data is safeguarded. This confidence provides the mechanism to exchange data between healthcare organisations whilst providing a safe, secure and governed environment. SeRP ensures that any access to the data is fully controlled by the data owner, to ensure appropriate and agreed use.
Ministry of Health – British Columbia (Victoria). A burgeoning partnership. More details to follow.
Monash University, Melbourne, HELIX – The Helix platform offers researchers a ground-breaking new environment underpinned by high-performance, secure and specialised IT infrastructure provided by SeRP. Helix offers researchers the technology to work with sensitive data in secure environments. This capability combined with Monash expertise in health data systems, eResearch, data science and artificial intelligence will enable researchers to address the challenging questions Australia faces in the present age of digital health and precision medicine. www.monash.edu